A DAMN GOOD TIME: Party to Make Myotonic Dystrophy History!
June 7, 2018 @ 6:00PM — 11:59PM Eastern Time (US & Canada)
IT WAS OUR FIRST ANNUAL DGT!
What: A one-of-a-kind night of entertainment in NYC to raise awareness and support for myotonic dystrophy and the Myotonic Dystrophy Foundation. The first annual A DAMN GOOD TIME included live music and comedy, great food, signature cocktails and the Care and a Cure raffle. Prizes included concert and Broadway show tickets, backstage passes, NYC restaurant tickets, premium tequila and lots of surprises!
Where: Sony Hall, 235 W. 46th St. NYC's hottest new premier venue
When: Thursday, June 7th, 2018, 6 PM
Why: Imagine losing the muscles in your hands, heart, throat or face. Imagine your body starting to waste away in your 20's. Imagine cardiac complications, breathing issues, speech problems and emotional and intellectual impairment.
This is the everyday reality for people living with myotonic dystrophy. Myotonic dystrophy (or DM) is the most common form of muscular dystrophy, affecting well over 100,000 people in the US alone and hundreds of thousands globally. It is a slow progressing genetic disease, and considered the most variable disease in nature, making diagnosis very difficult. It typically takes at least 10 years to get a DM diagnosis, sometimes triggered when a very affected baby is born in the family.
As DM progresses, affected individuals often lose their jobs, mobility and overall quality of life. The Myotonic Dystrophy Foundation is leading the charge to find therapies and a cure through research, drug development and gene editing initiatives.
With your support, MDF invests in:
- Drug development acceleration
- Grants to scientists and researchers
- Funding for research tools and clinical trials
- Gene therapy cures
- Patient registry and outreach
- Global resources for affected families
- In-person and virtual support groups
- Staffed Warmline
- Toolkits, publications & conferences
Go to www.myotonic.org to learn more.